Lead a portfolio of work that shapes our influencing agenda across England, Wales and Northern Ireland. In this pivotal role, you will drive forward high-profile projects, developing policy that makes a tangible difference to the lives of people living with and affected by motor neurone disease (MND).

Working closely with colleagues in Campaigns and Public Affairs, you will ensure our voice and the voice of the MND Community is heard. You will identify and develop strong policy positions, engage with key decision-makers, and navigate health and social policy structures to achieve meaningful change. Your proactive, solutions-focused approach will help turn ideas into impact.

We’re looking for someone confident in taking a position, inspiring a team, and influencing policy from concept through to delivery. This is an excellent opportunity for you to shape policy, build influential relationships, and deliver improvements that matter most to those living with and affected by MND.

Key Responsibilities:

• Lead the development of policy, research and analysis to strengthen the Association’s position in key debates.
• Analyse public policy to identify barriers and develop practical solutions for campaigns, briefings and submissions.
• Write and oversee the production of high-quality policy papers, reports and speeches.
• Build and maintain strong relationships with policymakers, government, academics and other sector stakeholders.
• Co-ordinate updates on policy developments for internal teams and share information in accessible formats.
• Represent the Association at meetings, seminars and conferences.
• Line manage a team of three Policy Advisers, providing effective supervision and clear objectives.
• Organise policy-related consultations and events.

About You:

• Strong knowledge of UK political systems, including government departments, Westminster and devolved nations.
• Excellent communication, negotiation and influencing skills.
• Skilled in planning and managing multiple projects to tight deadlines.
• Proven track record in outcome-focused policy development and analysis.
• Confident in interpreting complex issues and presenting them clearly.
• Collaborative team player who can also work independently.
• Experience of managing staff or external consultants.
• Willingness to travel within the UK, with occasional evening or weekend work.